It's a MSed up life, so diverse and random & more adventurous than any non afflicted mind
Sunday, October 14, 2018
MS Walk 2019 Prince George
Well it's getting closer every day. I just installed a widget on top, to display the time down till our MS Walk traditionally held on the last Sunday in May (find, join and donate to us on Facebook) annually, taking over Lheidli T'enneh Memorial Park. Well, if we go back into the history of Prince George's MS Walk, long before the park had its rightful name returned, we would host it in June annually. It would go from Cottonwood Island at the Nechako and Fraser confluence. It continued in June for a few years after we came to the park formally known as Ft George. I cannot remember exactly what year May became our Walk date. What are your favorite memories of the walk in Prince George, since before 2000 till last year as when you read? I am sure Lonny in Nelson BC (The "Event Coordinator" for the Northern Region Chapter of the MS Society of Canada) would like them for her publication. Future widgets will countdown to other events to happen in the Prince George Multiple Sclerosis community, a post like this will follow! Thanks for following these posts made infrequently
Saturday, September 29, 2018
MS and Cannabis. Weeducation 101
The post you have been waiting for. I know I have waited for it to be published. Tired of waiting I will write it myself. Meh. All good. lol it's what I do anyway. So I hope to answer your questions of this "new" thing that is happening in Canada. What is weeducation? Is it free?
What is Weeducation?
Weeducation is learned experiences. Best way to obtain creditable experience is to actually have a puff. Eat a "Medable" (that's a Cannabis editable, perhaps your first lesson in Weeducation). Consume a small amount at first but consume the whole thing in one long sitting. Survive happily or not, key is survival and no medical intervention is needed unless you actually hurt yourself. Drink a blended Smoothie with some form of cannabis added. Second best method is accredited study, self study best. Learn the differences between raw and activated Cannabis. Learn about CBD, a component of the plant. Study the Cannabinoids beyond the hypeSub-question "What are Cannabinoids and Endocannabinoids?"
I'll answer with a video:Now that that sparked an interest...
Go further with second hand research. See that raw Cannabis has an acid that makes it inert in your next study and that suggests the whole plant is better than parts of it. Raw cannot make anyone high, it is as much of a preventive measure for all ages as we age from birth to death. The Cannabinoids it adds to the diet are closely related to our Endocannabinoid system thought to control major parts of health and wellness. All in all you can just chill with this webinar that was presented on on the 3rd of October 2018 from 11-12pm, presented from the MS Society of Canada. A blog post I've yet to read on it, from the MS Society of Canada (part of your donations to events like the MS walk occurring nationally on countdown displayed on the top banner) was written by the society President (Pamela Valentine, President and Chief Executive Officer )in 2019. She would love it if the Society becomes "Weeducated" to help them understand their clients. That's us, the ones with lived experiences with this disease. You are well on your way to becoming "Weeducated" yourself.But is it all free?
This part is free. Share it. Weeducate your contacts. "Puff Puff Pass- Share it forward! That next part of Weeducation is also free and it inspires your contact, could be a blazing partner! Legal stores now exist for full blown weeducation but so does the original market knocking on your buddy's door, perhaps at midnight. Many times it's understood market open 24 hrs and much less expensive, somewhat safer than legal but discretion born durning the prohibitive "Refer Madness" years.Monday, July 9, 2018
Back home
Begin the adventure:
The trip there was uneventful. Not really boring it started out with a trip from home to the Airport. Thanks to the partnership between PG Taxi, Airporter and because of an agreement discovered via a network of sources at Transport Canada concerning the connection between communities and departure venues such as Airports. I wrote about that in my last post, it went through without a hitch. The flight was good, the staff at the airport was extremly friendly and helpful, I really enjoy WestJet for these litlle adventures. We landed at YXS and Skytrain was there to take me downtown Vancouver. I got out from Waterfront Station on Cordover and asked Google to take me to Granville Island.
The 1st Adventure, Waterfront Stn on Cordovea St. to Aqua Ferry by West Hastings St.
Google Maps screen capture showing route between Waterfront Skytrain Stn and Granville Island Via the Ferry, and 2 land routes. |
Simple right? Google has a cool feature, as long as my phone reached Wireless which I have discovered is very common throughout the city, particularly in West Van of navagaing a path it warns may be missing sidewalks and amid heavy traffic on Highway 99 could be worrying to the pedstrian's parental figures. I exited Waterfront. The route down the South east street was the farthest, it appered to use the Sky. I attempted that from my Hotel and got to one of several barrers I found on the Seawall, distence being one of them when I attempted the night before departing. I decided enroute from Waterfront that the Aqua Ferry would be wiser to arrive at the hotel and get settled. Very cool thing about visiting Vancouver, the frequent Wifi hotspots. For those of us who don't mind Google tracking our whearabouts that is and rolling pedestrians who canfocus both on the phone and the path ahead skillfully avoiding footed pedestrians amid stares and finger gesters from vehicales, getting wiser in navagaing those distracting turns deturing into allys to lightup through a medicianal tour of Vancouver. "Turn left here" screamming louder and louder, then recalulating then signal lost untill I turned around and came back along my path towards the ferry launch point at Hastings. It wasn't all that far and I found it looking for a hotspot with the second Joint which became a roach. That was the area of town I usually stayed in so far, familular ground as I used that part of the Seawall east quite a bit for viewing and toking towards the ocean winds. I boarded the Aqua Ferry and took a short hop across the bay to the artificial Island called Granville.
The reason for the trip
But what am I doing on a Patient Oriented Research group, to begin with? What is any patient doing in research other than being a test subject? What is it to begin with? Well, there are different nonintrusive ways for researchers to gather information. You can do it too, just become an activated patient with the British Columbia Patient Voices Network and wait for opportunities to arrive from SPOR and/or the BC SUPPORT Unit. We are a very valuable resorce for all Canadain patients to communicate with their medical support teams. When I was asked to introduce myself, I explaned that among other duties in my community I consider myself the Facilitator for Cannabis changes in Prince George and I could talk for hours on it. I also explaned all the knowlwedge I have is second hand other than how it has worked on me and my MS, it needs to be proven to sceptical pharmacy trained medical professionals. I see this as the biggest change in Canadain mediine for the coming year, if not decade and longer and perhaps a use for my voiceGoing home
I checked out of Granville Island Hotel around 830am after enjoying a "Continental" breakfast of Yogurt, Muffin, Fruit and enough coffee to have a cup and fill my travel mug... The Dockside Restaurant had many pleasent views of West Vancouver. I got slightly lost heading to the Aquabus. All good, it was a straight line from the hotel at one end of Granville Island to anywhere "local". Got across the bay. Decided I had time to cruise back down the Seawall, take a picture of the distance as I had attempted to get there from Granvel Island over the Seawall and go to WaterFront Stn the night before. I got a few blocks down, encountered one spot on the Seawall not accessible and I tipped my scooter. Got back to Aquatic Centre Ferry Dock on Hastings and asked Google to point me in the direction of WaterFront. 2.5 Km (about 10+ blocks) later I found familiar territory on the other side of West Vancouver. Well, that would have been the case if I followed a straight line between Hastings and swing left a block on Cordova to 601. Through my actual moving and detouring between construction zones and areas of inaccessibility, aesthetic distractions and other turns and distractions (look- a butterfly in the city!) it took me the better part of 1.5 hrs, slightly down in battery power to arrive finally at the proper Skytrain Station which had a lift down to the trains. I got to the airport in time to munch a Carl's Jr burger and hop on the plane after rinsing it out of my mouth with a drink of water. Love all those shops past Security in Vancover's airport , aka YXS.Friday, June 8, 2018
Vancouver bound 2018- The adventure before
From the 28th of June to the 1st of July 2018 the City of Vancouver will be my rolling playground. I have an introductory meeting there for the BC SUPPORT Unit Patient Council that I will be joining. As far as I can understand, it's about researching diseases affecting BC patients. There are 2 persons affected by MS on the board now and I'll be the third. I have a feeling I was chosen because of my Facilitator position at the Self Help Group and I am an Activated Patent of the BC Patient Voices Network... I joined way back when they first came to Northern Health's hometown of Prince George and expanded their reach through my Health Authority influencing patents of all walks of life and professions to the Yukon border and beyond. All Canadain provinces have a Patient Voices network now, we're just the most influential imho here in BC. This paragraph is written before I depart, I have a couple of things to do in advance:
1. I need a house sitter. My cats will need to have water changed daily, perhaps litter scooped out. This was not an issue last time I went down. Since then, my toilet was changed and they no longer can have that as a drinking bowl when I go for a couple of days. Their water gets dirty when sitting just a few hours but I don't expect a house sitter to live here the whole time unless they want to and I can trust them. Once a day with a larger container of water changed in the morning should satisfy them just fine. I put down a larger container for their water, it stays cleaner longer but does not last 24 hrs yet. Any larger container might be too large for them. May try 2 large containers next. Seems to be good that way. Now to see if Litter boxes can go 3 days to be cleaned upon my return. On day 2 now, no complaints from the cats.
2. I need to ensure the Airporter knows how to book me with a mobility device coming and going. Airport and PG Taxi have an agreement. Traveler has a mobility device calls and requests accessible transit to the airport. Airporter books departure and arrival makes a call to PG Taxi, who has accessible taxis. PG Taxi will pick up the traveler. The traveler will pay the cab driver only the Airporter shuttle's fee for the ride. Airporter and PG Taxi square up the account as per their agreement. When I tried, I got a clerk who knew nothing of this and denied me passage. I contacted Michelle Kenny, Manager of Corporate Services for the PG Airport Authority and she assured me the information will now be put on their website. I hope she will put it on both those web pages. PG Taxi will always have accessible cars you may call them if you need them while in town (providing you have a travel-ready device). She gave me another number to call and this should never happen again where a traveler with a mobility device is denied transport on PG Airporter. I got my ride booked as of the 5th. If the information is not available on either the Airport's or the Shuttle services website or a sales clerk is confused then please contact me (comment below) and I'll again contact Michelle Kenny to have it available for you when you travel. I am not going to be the only one privileged for it. Prince George leaves a lot to be desired regarding transportation between airport and city. Presently Vancouver is much better for ground transportation between multiple departure points and city. Well, after I typed this, it would be a great time to ensure my mobility device is travel ready...
Travelers have apparently can be denied passage because of their device. Nope, I have Gell Cells, not Lithium batteries. It's a lightweight, and short enough. 48" end to end, Tiller folds down, the seat is removable if needed. They usually disconnect the battery, it has clips to break the connection. It's even clean and in good condition. I should be ready to go with it. If you have any doubts about your device, consult the place you purchased it from, have it serviced at regularly, a user's manual perhaps, a website even if opened by a friend will help.
3. Meetings. Yes, there are several this month, not including phone meetings for my course at Business Abilities, available through Make A Change Canada where I am an Alumni of IBDE and BA. I also have a couple of personal meetings for the latest and one speaking engagement described in a previous post here. The Power Mobility Society of Prince George. So far, We have found a new home for the Power Mobility society at the end of May, preparing for a new time on the Second Thursday of every month at 10 AM. We have strengthened our connection to Medichair Northern BC as they offered us a room to use for our meetings at Medichair Prince George. The first one will be on the 14th of June. Comment below if you ride a mobility device in your community in British Columbia. Medichair is also found servicing many of you in British Columbia. Contact the Society by commenting below and I'll pass the information on how you can help us grow through the province to promote safe enjoyment of our needed devices.
The next 2 meetings will happen back to back on the 21st. The first will be with the Accessible Transit Action Committee, a group of civic Transit authorities, civic officials and members of the public who ride public transit. We discuss changes in bus routes, challenges faced by use, and we brainstorm ways to overcome and make our transit system the best in the nation for accessibility. We've been doing that since 1995. The latest highlight will be my experience trying to book Airporter with a non-folding mobility device. Right after that meeting, we have an MS Self Help Group meeting, the last one before Septemeber 2018. We will be at A&W for the "Burgers to end MS" event to be held on the 16th of August this year. As in previous years, I cannot find a link this far from the event for this year. It's held annually, this year $2 from every Teen burger sold will go towards MS research Our community will be at the Southridge location in Prince George. Perhaps see you there! If you have an aversion to burgers, there are donation tins at every till or A&W location in Canada
On the 11th of June, The community will host Lonnie Facchina, Community Services Coordinator for the Newly formed Northern Regional Chapter of the MS Society of Canada who is doing a tour around the large Northen Regional Chapter's area of concern which goes into the Yukon Territory. It should be very interesting, this is the second visit Lonnie will make to our city at the "head" of their region that mirrors Northern Health's area of responsibility for the MS Clinic of the University Hospital of Northern BC in Prince George.
4. Life. Well, won't go too deep on this. Going out and socializing, networking and enjoying life in Prince George. I've managed to do that since getting my head on straight in around 2005 after accepting that life is better without fighting against this MonSter inside of me and quitting Tobacco. I had enough of the true monsters inside my head and evicted them from my thoughts. Now the MonSter inside me is accepted and coexists in my body. MS does not own my life, I own it. It cannot affect me. I will not let it. I can hurt myself way worse than the MS, it knows that and is relatively tame. I use no DMDs. I consume Cannabis in multiple forms when I can afford it. I'm ready to go, stay tuned for my next post which will happen when I get on my way to Granville Island in Vancouver, BC to join the BC Support Unit Patient Council, on the 27th. WOOT!
1. I need a house sitter. My cats will need to have water changed daily, perhaps litter scooped out. This was not an issue last time I went down. Since then, my toilet was changed and they no longer can have that as a drinking bowl when I go for a couple of days. Their water gets dirty when sitting just a few hours but I don't expect a house sitter to live here the whole time unless they want to and I can trust them. Once a day with a larger container of water changed in the morning should satisfy them just fine. I put down a larger container for their water, it stays cleaner longer but does not last 24 hrs yet. Any larger container might be too large for them. May try 2 large containers next. Seems to be good that way. Now to see if Litter boxes can go 3 days to be cleaned upon my return. On day 2 now, no complaints from the cats.
Travelers have apparently can be denied passage because of their device. Nope, I have Gell Cells, not Lithium batteries. It's a lightweight, and short enough. 48" end to end, Tiller folds down, the seat is removable if needed. They usually disconnect the battery, it has clips to break the connection. It's even clean and in good condition. I should be ready to go with it. If you have any doubts about your device, consult the place you purchased it from, have it serviced at regularly, a user's manual perhaps, a website even if opened by a friend will help.
3. Meetings. Yes, there are several this month, not including phone meetings for my course at Business Abilities, available through Make A Change Canada where I am an Alumni of IBDE and BA. I also have a couple of personal meetings for the latest and one speaking engagement described in a previous post here. The Power Mobility Society of Prince George. So far, We have found a new home for the Power Mobility society at the end of May, preparing for a new time on the Second Thursday of every month at 10 AM. We have strengthened our connection to Medichair Northern BC as they offered us a room to use for our meetings at Medichair Prince George. The first one will be on the 14th of June. Comment below if you ride a mobility device in your community in British Columbia. Medichair is also found servicing many of you in British Columbia. Contact the Society by commenting below and I'll pass the information on how you can help us grow through the province to promote safe enjoyment of our needed devices.
The next 2 meetings will happen back to back on the 21st. The first will be with the Accessible Transit Action Committee, a group of civic Transit authorities, civic officials and members of the public who ride public transit. We discuss changes in bus routes, challenges faced by use, and we brainstorm ways to overcome and make our transit system the best in the nation for accessibility. We've been doing that since 1995. The latest highlight will be my experience trying to book Airporter with a non-folding mobility device. Right after that meeting, we have an MS Self Help Group meeting, the last one before Septemeber 2018. We will be at A&W for the "Burgers to end MS" event to be held on the 16th of August this year. As in previous years, I cannot find a link this far from the event for this year. It's held annually, this year $2 from every Teen burger sold will go towards MS research Our community will be at the Southridge location in Prince George. Perhaps see you there! If you have an aversion to burgers, there are donation tins at every till or A&W location in Canada
On the 11th of June, The community will host Lonnie Facchina, Community Services Coordinator for the Newly formed Northern Regional Chapter of the MS Society of Canada who is doing a tour around the large Northen Regional Chapter's area of concern which goes into the Yukon Territory. It should be very interesting, this is the second visit Lonnie will make to our city at the "head" of their region that mirrors Northern Health's area of responsibility for the MS Clinic of the University Hospital of Northern BC in Prince George.
4. Life. Well, won't go too deep on this. Going out and socializing, networking and enjoying life in Prince George. I've managed to do that since getting my head on straight in around 2005 after accepting that life is better without fighting against this MonSter inside of me and quitting Tobacco. I had enough of the true monsters inside my head and evicted them from my thoughts. Now the MonSter inside me is accepted and coexists in my body. MS does not own my life, I own it. It cannot affect me. I will not let it. I can hurt myself way worse than the MS, it knows that and is relatively tame. I use no DMDs. I consume Cannabis in multiple forms when I can afford it. I'm ready to go, stay tuned for my next post which will happen when I get on my way to Granville Island in Vancouver, BC to join the BC Support Unit Patient Council, on the 27th. WOOT!
Tuesday, May 29, 2018
Voices. In my head and in front of you
I started this blog back in 2010. As of the last post I posted, just a few days ago and never really shared anywhere but everywhere in the mainstream of people who may be looking in on me from many public talks I have given, 2 eyes have seen it. Thank you for looking in. I hope at the very least you'll see this one. My writing was used during my rebellious teen years living in a functionally dysfunctional family and that continued to the first few years with this condition but life post-MS and mental health treatments took some of that skill as well as my confidence as I took care of myself. Years ago, the MS society helped me with a membership to Toastmasters. A particular chapter of that international organization is still is connected somewhere back along my personal timeline. I managed a blog for them in my past. That was around the start of this blog as I began to work on my technical Blogging skills. I have always thought that a good speaker is a good writer, and I have been told I am a great speaker and my writing at times has impressed, inspired and directed. The MS Society was willing to continue paying my membership to Toastmasters but I refused. The limited times I spoke there, once or twice it came back and I realized my voice again in sporadic passionate speeches themed towards that I confidently have knowledge of. It's not good at all times but when I need it, it's powerful and strong.
My voice training had occurred in my youth. Around 15, I joined up with a new chapter of a Royal Canadain Sea Cadet Corps that began in Ft St James in around 1981 and died around 1992. By 1983 I was a Senior Cadet in charge of a Division of 20 or more cadets and in 1984, I aged out and often led a group of 40 or more cadets on and in Parades and at Sea a couple of times on a ship, my position was a "Sea Training Officer" long before there was standardised training for it. In around 1989 I left that Sea Cadet Corps and drifted to Alberta where I had limited exposure as a civilian volunteer with the Army Cadets there and then through Vanderhoof with Air Cadets to Prince George with Sea and Navy League Cadets till my mental health made me leave after 22 years. My writing left after the Mental Health sessions were completed in 2005 when I became "sane" and quit tobacco use in August.
Why would I need to have voice training that would take money from our MS community in my adulthood? By 2005 I had found my place as the facilitator of the Self Help group in a then chaptered city. It caused me more internal conflict and a little more of my voice left with the stolen confidence. I began Emceeing for the Handy Circle Resources Society around that time, by 2015 I was Emceeing all their events and CANDO. I had been on local TV as well, interviewed a couple of times for accessibility stuff while I sat on the Advisory Committee for Accessibility. I have spoken on a couple of radio interviews as well for CFIS 99.3 Fm doing business as the Prince George Power Mobility Society. All that happened after 2010, it's 2017 as I type. It's weird when I think of it. My confidence returns when I stand in front of an audience, 99% of the time. I have Emceed at many events, as a volunteer most of the time. The first couple of times I messed up but have been complimented lots. I am often medicated on THC and CBD when in front but that's to deal with the pain of standing, a constant deterrent to my confidence. All my speaking I have done, with the exception of Cadets, has been inside. My next public speaking engagement will be a milestone moment in my career of public speaking. I was approached by a contact of mine, who first saw me as a Cadet leader and was impressed.
I had spoken at her home business and wellness shows a few times and she attended many of the events I emceed for Handy Circle. I was Emceeing at the CANDO 2018 event at Prince George's accessible Civic Centre in early May. I used my voice well, billing the Volunteer time to my MS community. My contact approached me just after the event ended and invited me to Emcee her new event to be held on June 3rd, 2018. I contacted her 2 weeks ago to confirm. Sure enough, I will be speaking at Lheidli T'enneh Memorial Park on June 3rd from shortly before 10am. This will be inspiring for me as I am building a business plan with help from Make A Change Canada through their Business Abilities course. I am a very recent graduate of their "Internet Development for Entrepreneurs" (IBDE) course. Yes, I do websites and WordPress setup and management as well as Public Speaking. Check out my business goals here behind this link!. That website will be hosting my client's questions about SEO and other design options and problems that arise
My voice training had occurred in my youth. Around 15, I joined up with a new chapter of a Royal Canadain Sea Cadet Corps that began in Ft St James in around 1981 and died around 1992. By 1983 I was a Senior Cadet in charge of a Division of 20 or more cadets and in 1984, I aged out and often led a group of 40 or more cadets on and in Parades and at Sea a couple of times on a ship, my position was a "Sea Training Officer" long before there was standardised training for it. In around 1989 I left that Sea Cadet Corps and drifted to Alberta where I had limited exposure as a civilian volunteer with the Army Cadets there and then through Vanderhoof with Air Cadets to Prince George with Sea and Navy League Cadets till my mental health made me leave after 22 years. My writing left after the Mental Health sessions were completed in 2005 when I became "sane" and quit tobacco use in August.
Why would I need to have voice training that would take money from our MS community in my adulthood? By 2005 I had found my place as the facilitator of the Self Help group in a then chaptered city. It caused me more internal conflict and a little more of my voice left with the stolen confidence. I began Emceeing for the Handy Circle Resources Society around that time, by 2015 I was Emceeing all their events and CANDO. I had been on local TV as well, interviewed a couple of times for accessibility stuff while I sat on the Advisory Committee for Accessibility. I have spoken on a couple of radio interviews as well for CFIS 99.3 Fm doing business as the Prince George Power Mobility Society. All that happened after 2010, it's 2017 as I type. It's weird when I think of it. My confidence returns when I stand in front of an audience, 99% of the time. I have Emceed at many events, as a volunteer most of the time. The first couple of times I messed up but have been complimented lots. I am often medicated on THC and CBD when in front but that's to deal with the pain of standing, a constant deterrent to my confidence. All my speaking I have done, with the exception of Cadets, has been inside. My next public speaking engagement will be a milestone moment in my career of public speaking. I was approached by a contact of mine, who first saw me as a Cadet leader and was impressed.
I had spoken at her home business and wellness shows a few times and she attended many of the events I emceed for Handy Circle. I was Emceeing at the CANDO 2018 event at Prince George's accessible Civic Centre in early May. I used my voice well, billing the Volunteer time to my MS community. My contact approached me just after the event ended and invited me to Emcee her new event to be held on June 3rd, 2018. I contacted her 2 weeks ago to confirm. Sure enough, I will be speaking at Lheidli T'enneh Memorial Park on June 3rd from shortly before 10am. This will be inspiring for me as I am building a business plan with help from Make A Change Canada through their Business Abilities course. I am a very recent graduate of their "Internet Development for Entrepreneurs" (IBDE) course. Yes, I do websites and WordPress setup and management as well as Public Speaking. Check out my business goals here behind this link!. That website will be hosting my client's questions about SEO and other design options and problems that arise
Saturday, May 26, 2018
MS Awareness month 2018 in Prince George
Whola cow, what a year this year. Our Facebook Group page has grown fast, with 31 members as I type so far and gathering MS'ers around the city. Tomorrow, the MS Walk will happen in Prince George on May 27th, 2018, you still have time to register! Several members of the Prince George community were involved in the planning and event preparation. It was very cool to see the energy a group of MS Affected individuals can do collectively that will be displayed on May 27th, 2018. To cap off that evening, Mr. PG which is located at the crossroads of British Columbia Canada, will be lit in Red starting that evening till the 31st. This will be for a couple of reasons. One, it will be symbolic to the world that passes and the contacts who will see the pictures they post. They will know the unique relationship that exists in Northern BC Life with MS. We have a "partnership" of sorts between the medical support at Northern Health's MS Clinic at UHNBC (toll free number 1-888-967-6774), through the individual communities where MS lives in Northern BC and the Yukon. They are connected to the MS Society of Canada's Northern Regional Chapter which is connected to the same communities. Those two sides are symbiotic with the collective community of affected persons in those communities connected through this connection, which includes staff and volunteers of the society and the clinic in those respective Northern communities where they live and work. It can be represented as a triangle of support. We all know our places in the Global community and that is one aim of Mr. PG's color display as May 30th is World MS day! Another aim of the lightup is to commemorate the end of Canadain MS Awareness month 2018 in Prince George.
Saturday, February 17, 2018
Cannabis and Multiple Sclerosis- My experiences
The Disclosure (Cannabis is a personal experience):
Before I begin, I'll start off by guaranteeing my experiences with Cannabis will likely not be like what you may feel, experience or "survive" while huffing, puffing, munching, vaping, slathering on your skin, chewing in the gum, shoving up your butt in a suppository or however you consume Cannabis. Raw uses are inert for your information, more akin to Lettuce. It has to be heated singularly to be active to have the effects that could be confused for Recreational use. It could also be used to enhance relationships for female pleasure, slathering places I can't discuss here on a family friendly blog... Ahem. Anyway my experiences are mine alone, but there are credible studies on how it affects Multiple Sclerosis overall. I do encourage you to explore and see how you like best. At its worse, it will not do harm unless you let it, I cannot say in all honesty it's completely safe but it has done way more good than bad in my MSed up life since 2000. One hit in experiment, a single cooke even if eaten fast and feelings of OD are overwhelming, sleep is all that is needed. Sometimes sex but this is a fairly safe blog and we'll stick to a therapeutic sleep. Onward past 2005 when I used it first to quit a 35 year addiction to Tobacco at 39 years old.Early Use and Cannabis:
I was introduced to Tobacco before I was born in 1965, through my mother who was a tobacco consumer until the late 1970's or early 80's. My father quit after a stroke in the early to mid 1990's. I lit my first cigarette at around 5 years old as an act of independence I am sure, it must have gone unchallenged by adults. The 1970's were a strange time as no one saw any problems with kids and tobacco use. Childproofing was a swat when caught. By the time Tobacco use got tough on youth I was an adult. Cannabis came into my life with some pretty powerful strains fresh out of Vietnam when I was 12, carried me through my Teen years with other influences and chemical experiences.
My home community was close to a remote community of draft dodgers from that war during the 1960's and then the actual Vets themselves once that war ended in the 1970's who went there to the wilds of Northern BC to recover. Cannabis is a treatment for PTSD among its diverse medical uses, very illegal in the Canada and USA of the time and widely used by the solders without realizing it helped what they felt... They had some major grows around the area, growing in the woods and cabins on Crown Land. Everyone local that I knew had at least one plant, some were actually seeds left over from the Vet's first generation stuff. That was my original form of rebellion, as my folks didn't seem to mind the Tobacco use but had Refer Madness views they tried to impress on me. I was hauld home once by the RCMP at 14 while I warned of a life of crime ahead. A school expulsion still I puffed as I explained why I should remain in school after selling the "Demon Weed". I think I heard that my roots were in hell like the plant they caught me distributing. I lived that life till I was in my early 20's, a rebel without a clue bumbling through life and trying to find work. I began working with the Canadian Forces through the Canadian Cadet organization as a volunteer at 19 as well as the BC Forest Service around 21. I had pretty much quit Cannabis before I turned 25, no longer wanted to make Dad mad and had work to do. Thrill was gone, I would have a puff at camp. it wasn't addictive like pain pills were earlier in life trying recreational use of that thanks to a fellow Bud I outlived. That was the life I lived before MS spiced with Cannabis and individual rebelion shaping that life really hurting no one but personal relationships.
Wazat connection to Vietnam?
My home community was close to a remote community of draft dodgers from that war during the 1960's and then the actual Vets themselves once that war ended in the 1970's who went there to the wilds of Northern BC to recover. Cannabis is a treatment for PTSD among its diverse medical uses, very illegal in the Canada and USA of the time and widely used by the solders without realizing it helped what they felt... They had some major grows around the area, growing in the woods and cabins on Crown Land. Everyone local that I knew had at least one plant, some were actually seeds left over from the Vet's first generation stuff. That was my original form of rebellion, as my folks didn't seem to mind the Tobacco use but had Refer Madness views they tried to impress on me. I was hauld home once by the RCMP at 14 while I warned of a life of crime ahead. A school expulsion still I puffed as I explained why I should remain in school after selling the "Demon Weed". I think I heard that my roots were in hell like the plant they caught me distributing. I lived that life till I was in my early 20's, a rebel without a clue bumbling through life and trying to find work. I began working with the Canadian Forces through the Canadian Cadet organization as a volunteer at 19 as well as the BC Forest Service around 21. I had pretty much quit Cannabis before I turned 25, no longer wanted to make Dad mad and had work to do. Thrill was gone, I would have a puff at camp. it wasn't addictive like pain pills were earlier in life trying recreational use of that thanks to a fellow Bud I outlived. That was the life I lived before MS spiced with Cannabis and individual rebelion shaping that life really hurting no one but personal relationships.
Limbo to MS Diagnoses
1999 was the start, the first indicator of the Diagnoses that would come a year later. The woman I had been living with for 5 years not so gently placed my stuff on the sidewalk one rainy morning in late May. Wasn't all my stuff, but that is another story too long to get into here. Thrilling if you didn't live it yourself. Long and short of it, about a week later in very early June, just after settling down into a new residence I walked into a wall. The corner of the wall actually. It kind of surprised me, that wall hadn't been there the day before I thought or the hall had shrunk somehow. I went to the bathroom I had been heading to and checked the small cut above my eye in the mirror. At that time I discovered I had problems seeing from that eye, which concerned me more than that wall. I rushed down to an optometrist who referred me immediately to a specialist where I found out the recent break-up had left me without medical coverage. Meh, the specialist's 20 min lookover gave me a $360 bill and a stern warning about how medical insurance is mandatory in BC and it is illegal to be without it. No answers, but I think I heard the words "Optic Neuritis" mentioned. I looked at her and thought "well, suicide is illegal too..." It was the start of my decline. I had not tried Cannabis at this point in a number of years. I started a year of spirail and doctors looking at everything except my mental health, to have an MRI in a mobile unit which gave me a diagnoses in June 2000. It got worse, just after diagnoses, my father died in July. It would take me on a roller coaster of Antidepressants that darn near killed a family I resided with and DMD's that made my MS worse and almost killed me. My refusal of those treatments got me tossed from the MS Clinic who refused to treat me and my personal health care provider doing the same when he learned of my Cannabis use which I restarted in 2003 to combat the drugs when I refused the MS DMD's and antidepressants. I did not know the exact benefits it was doing for my MS yet, it was combatting other problems and challenges at that time much better than pharmacy is all I knew.
The non-medical Cannabis supported years
I learned of Mental Health support in 2003 after a really low time in my life after leaving my doctor's care. The Mental Health condition I had carred since youth undiagnosed was discovered because of the MS while my doctors tried the DMD's, the Antidepressants brought it out as they tried to prepare my body for the DMD's then being denied treatment upon refusal. Being not supported by my permanent health care team I had to find the tools myself during those years. Those tools still exist if you need them (at least that was what I was told by UHNBC but I cannot confirm on their website), they can be found through the Northern Health building across Edmonton Street from the University Hospital of British Columbia. It's called the Community Resource Centre or CRC, ask for it by name when you contact that office. The "Bounce Back Program" was developed from those years, I spent 2 years going through those sessions, both group and private with a psychiatric nurse. A group session I attended on "Assertiveness" gave me the tools to control my mental illness and my life. The first positive step I took after that was in August 2005 when I gave up on a 35 year Tobacco addiction. Cannabis was a big help in that step. Tobacco was a trigger for the Mental Health. I had contacted Northern Health who in 2005 was exploring Tobacco cessation techniques from a Northern Health office on Milburn Street between Spruce St and where Milburn chances to Upland St. Not sure if that's still there but "Tobacco Cessation" is now a big part of Northern Health's overall structure of wellness along with other healthy living lifestyles. Before 2006 I had been invited back to the newly structured Northern Health MS Clinic which had visiting MS Neurologists from UBC to manage clinic patients, mine knew of Cannabis but ignored the use and respected refusal of drugs. My family doctor also requested my help, was impressed I had quit smoking and agreed to respect my choice of medications but ignored the Cannabis and got my acid reflux, high blood pressure and cholesterol under control. He was most impressed that I had quit smoking tobacco on my own (*the road I took actually). It apparently was a failure of his for every patient he had up to that point, his own habit had been dropped and was a bit of a sensitive spot I felt when he had asked me to leave his office for Cannabis use a couple of years before. I found out from a personal contact with MS, a former Nurse for Northern Health that he had his own issues with mental health. Meh. Doctors can be patients too I realized and softened towards his attitude, I had made contact and had became an Activated Patient of the Patient Voices Network by the time I returned to my doctor and the MS Clinic, I encourage you to to the same. It will connect you to our provincial MS Community at all levels among every other affliction and condition and profession, just with your friendly nature and knowing your journey to become who you are to that point. It also gave me trips to Cannabis friendly Vancouver and opened many doors in that world. Just because it's considered medical, it does not stop anyone from enjoying it, particularly me. That did not work so well with Pharmaceutical, alcohol and this way was way safer in my humble opinion. Coming back safe and alive appeased my contacts.
Cannabis and our future
Sometime before 2009 my MS Neurologist signed my legal paperwork for the Consumption of (then known as) Medical Marihuana, the "Medical Marihuana Possession Requirements" form or MMPR. Around 2013 my Neurologist retired and I switched to a new one, she refused at first. I sighed and asked my doctor. He tossed up his hands and said "If you have something for me to sign, bring it in. Until then, shut up about it" as he stormed out of the room. I chuckled. I downloaded the form from the Health Canada website (it was a difficult search at first) then he filled the form, did not charge me for several years. Last year it was 10 bucks. Doctors have a ceiling in BC as to how much they charge for any form, I ask people to "shop around" if the price seems too steep. It's a single signature, an amount not exceeding 5g a day and his contact information not to exceed 12 months. He found a way to make money (likely hard to find from BC Health insurance patients) and he does volunteer a lot of time in the Walk In clinics of the city. I had no problem paying it. Thanks to changes in our federal government it is now called "Cannabis" and the information can be found on Health Canada's new website that was changed to reflect Healthy lifestyle choices but directs you to seek a Licensed producer. You can find how to grow it yourself. That is the direction overall I see that Health Canada is adapting at its core, that page should be updated for the most current information when you look. The form you need, now known as the Access to Cannabis for Medical Purposes (ACMPR) form that you take to your doctor can be found there, here it is in PDF form to download and print, It will be changed to the most recent if changes happen from these links to their site. You must have it before you apply to become a grower,
But what does it do fo me?
*sigh* For starters. It replaced all those antidepressants that took me on a roller coaster ride through early MS life. It helped when I dropped the MS DMD's cold turkey described above, still helping me say upright today. I did some damage to my right arm with a Scooter accident that is wild when I describe it but too long for this post. I got a strong dose of heavy duty opiates to deal with the pain as I was in the Hospital for about a week and got a batch of pills to take home. The moment I arrived home I started to consume Cannabis. I had withdrawals from the narcotics given by the hospital it was easier to deal with Cannabis. No one should be convinced to do dishes and take out Kitty litter at 3 am as I had to with one arm. The opiates did noting for the pain that shoulder was feeling. Cannabis got me all the way through it and the pills are ready to be returned for disposal. It does more. It helped with the Tobacco cessation. I did have other help from Northern Health as described above and I think it is still helping as 35 years of abusing it with Tobacco I am still relatively healthy despite having MS for 17 years as I type this. I have no Cancer so far, No serious terminal diseases or other serious indicators. My bones seem stronger. The accident I had should have created more damage, I was traveling so fast as I hit the ground
Tell us about the accident already and how does it relate to Cannabis?
Some MS Affected friends had come to town for Labour Day Weekend 2017. I live in an apartment building, the weather was nice. I took my mobility scooter to the park in what I consider "My Backyard" atop of Connaught Hill. We got to the spot, relatively fast. We consumed a few Cannabis cigarettes as we watched small rodents and birds and other forms of nature occupy their time. It was a lovely way to reconnect with old comrades. It came time to roll back down the hill home, and just like I had done a millions times before I rotated my seat on my scooter and prepared to go. Something was wrong. My power was on and my triggers did not move me back or front. I considered my options. It was downhill. There is a "freewheel" setting used to move the scooter in this situation. I thought there was a safety feature built in to Scooters, a misunderstanding somehow burnt into my thoughts, that prevented overspeeding. Anyway I slowly rolled free to the top of the hill. I could use my feet at that time to control the speed and sit to ponder if I had the safety feature in this machine as I took off. I was quickly building up speed when I realized I didn't have the safety feature. That realization came just as my hat took off from my head and likely landed behind me someplace. I felt I was going faster than the posted speed limit on an active road and it was getting hard to control the device, I was drifting over to the oncoming traffic lane on an active road and there was a corner arriving very fast with a speed bump behind it. I simply stepped off at high speed once I pulled myself into the lane I should be on and expected that the worst that could happen likely was better than trying to roll all the way down on the scooter. I tore some small bone very important to controlling the arm at the socket which I broke a corner off of and had a ton of road rash.
What will Cannabis do for you?
That I cannot say. Like Multiple Sclerosis, your experiences will be unique to you. I can guarantee that it will not kill you, you MAY enjoy it if you let it be enjoyable. If you get too high, you will sleep it off peacefully. Eventually. You just need to get comfortable. Take it slow when you are new. Just because you are a seasoned consumer of one way be aware different forms of consumption have different effects on your body. be open to explore all of them at a pace comfortable to you. All use is medicinal and there are many more ways to consume and use than smoking it! Many uses do not make you high. It is safe to experiment. Take it slow at first, with new ways of ingestion and consumption. Find your best way and don't limit yourself.
Closing. Very little to do with Cannabis
A couple of years ago, our local office of the MS Society of Canada closed suddenly and the entire structure of the Society changed nationally. We have a new chapter now, with a Society staff member from Nelson coordinating a new region of MS affected people across Northern BC, the Yukon territory and a few communities in Southern BC. The New chapter is known as the Northern Regional Chapter. The Prince George Multiple Sclerosis Self Help group was left in Prince George to manage the hole in our community left by the closing of our local office. We Are not affiliated with the chapter. In fact we consider the chapter part of our community, exactly 1/3 of the population of support we enjoy as patients. There is another Self Help group in Quesnel and there could be one in your community. The biggest thing we found in Prince George is that the Prince George MS community has no independent source of income. Our group had to reform to fill that void and restore the trust in our locally affected community that the MS Society of Canada had not completely abandoned us. The first thing the group needed was a leader. A "Co-Facilitator, Meeting Chair Person" was located, as well as a member of the Northern Regional Chapter to act as a Society Lesion. My position of Facilitator sets the direction the community goes over its existence, someone else will hold that role eventually.
Rebirth needed funds to grow
When the chapter was here we enjoyed a lot of activities because of the funds supplied by the office for our regional events held locally, we had a lot of clients throughout the PG Chapter's small area. The MS Walk is the biggest fundraiser the Society has, It has happened here for at least 20 years. A large percent of the funds donated to the popular Walk stayed local because of the Chapter. Support from Prince George and surrounding areas had dropped drastically since the office closed. Another of our members, actually our MS Society Lesion formed a Team for our MS Walk happening on Sunday, May 27 in Lheidli T'enneh (formerly Fort George) Memorial Park, check in 11am. The thing we discovered was that Self Help Group teams get 10% of donations collected returned to us to give back to our community. If you help us, we can help others. our meetings run between September and June, 1 to 3pm every third Thursday of the month. Plans are underway to host a second meeting in a later time slot that could be more convenient for others. There could be an MS Walk in your Northern community too, the Quesnel Self Help group helped their community form a a walk event and has a team too!Find your way to our Walk in Prince George below!
See you there! Don't forget to donate or join our Walk team supporting Prince George!
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